8.31.2011

Sucka!





Geo's barking up the wrong tree!     
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8.28.2011

Bubble bath + bubble machine = awesome


...and only four more hours until bedtime.  Thank you "Hurricane" Irene.
posted from Bloggeroid

Awww...


posted from Bloggeroid

8.27.2011

Rock wall


1. I can't believe how tall this freaking thing was.
2. I can't believe my first little baby was OK with it. Yes, it's Buzzy, so duh.
3. I can't believe he made it by himself (kinda) all the way to the top.
posted from Bloggeroid

Pony boy


posted from Bloggeroid

Bah Dah Barclay

My grandmother always said that she had a fifth kid named Bah Dah. When calling one of her kids, she often called out at least one, if not all, of the other names, and then yelled, "Bah Dah," in exasperation.

Bah Dah has apparently moved into our house.

8.25.2011

8.24.2011

YeeeeeOwwwch!


Chickens started laying! All I can say is, I feel really sorry for one of them.

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8.23.2011

Georg squared



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8.14.2011

The 6 Misters Barclay



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Big boys



posted from Bloggeroid

Geo Joe



posted from Bloggeroid

8.13.2011

He's Official!

Just got Georg's birth certificate in the mail today!  It arrived at the same time as his very first - of many - misspelled letters to "the parents of George..."

8.10.2011

Newty



posted from Bloggeroid

What the heck?!

We weren't even going to attempt to potty train Newt until after the dust from the G-bomb settled.
Well, two nights ago, he decided to poop in the potty. So, because we told him he'd be able to, he got a pull up to sleep in. He woke up dry, checking another one off the list. So, he expected to wear underpants. Oh, boy...
Now, we're two days into involuntary potty training. Between all the potty trips and feeding the infant, a single trip to Michael's took 2.5 hours! For 6 items!
We.re on Newty Standard Time. When is this kid going to freaking cooperate?

posted from Bloggeroid

8.07.2011

Going home!



posted from Bloggeroid

8.03.2011

Newty sez:

Upon seeing Geo for the first time.
"I have big, big hands.  I have a big head!!"

8.02.2011

Welcome Geo!


Georg Joseph
8/2/11 @ 3:55 pm
6 lbs 6 oz & 18.5"

posted from Bloggeroid

Dr. Clark


 Hah hah ha ha!! He made it!
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7.31.2011

7.30.2011

Blueberry picking



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7.29.2011

Cherry plain



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7.28.2011

Screw that!

We had four little caterpillars... either monarchs or black swallowtails.  Couldn't find organic parsley, so I super washed some conventionally grown stuff instead.  They were writhing, dying and pooping themselves in minutes.  I'm never touching non-organic again. What the hell are they allowed to do to our food?!

7.27.2011

7.25.2011

Bowling with Gracie

Getting beaten by a 13 year old, I understand.  But, Buzzy beat me by 4 pins today. WTH? At least I beat Newt.


posted from Bloggeroid

7.23.2011

Geez!

Delivery day just got moved up a week. Now it's August 2.  Like my anxiety needs this.

7.22.2011

Last Transfusion

So things got a little hairy.  In short, I was a little more uncomfortable during this procedure, apparently got all pass-out-y, blood pressure plummeted, so Geo's heart rate dropped and things went a little south. I remember the table tipping hard to the left in an effort to snap him out of it, a bright light going on, I heard, "I think we're looking at a section" and a flurry of activity.  If you've ever had some drinks and experienced a sobering moment, just know that it can happen with anesthesia, too.  Oh, I woke the heck up.  Fortunately, Geo rallied and his heart rate came back up, but the rest of the procedure was called off.
I'm so, so freaking glad that we were here for this and not in NYC.  The main difference that we had been worried about was the level of preparation and prevention.  We felt that in NYC, they wouldn't be doing enough to prevent something like this and in the event that it happened, they wouldn't have had the luxury of the few minutes of decision time because they weren't as prepared. I have no doubt whatsoever that this would have been finished right now if we had transfered to NYC.
I've laughed to myself every time we went to what has become our traditional BBQ place here... their motto is, "You might give some serious thought to thanking your lucky stars you're in Texas."  You'd better believe I sure as heck do.

7.17.2011

Saratoga Racetrack



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7.16.2011

Birthday project


Eff you, fire-pit-stealers!  Go ahead and try to steal my new ghetto-fire-ring! Wait... please don't.
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Packing up for the last time!

Just finished packing for the Texas for the last time.  We're flying out on Tuesday night because the final fetal transfusion is scheduled for this Thursday.

Buzzy sez:

Buzzy emerges from play room wearing a horned viking helmet, underpants, an orange Home Depot apron fashioned into a cape and clutching a toy mallet.
"Hey look!  I'm Fork!!"

Awesome on so many levels.

7.14.2011

There's an app for that.

Just installed a countdown app on my phone and set it up for Geo's arrival.  Damn near gave myself an anxiety attack: 26 days!

Appointments, appointments, appointments...

Saw my regular OB for the first time in what seems like forever... a little freaked that we made the final appointment and scheduled the induction!!!  August 9!

7.12.2011

Just as I suspected.

We just got a bill in the mail from the NYC Doctor.  $2500 because the lady in the billing department is as  inept as I suspected immediately upon meeting her. Oh, bother.

7.11.2011

Finally, some good news...

I'm still walking around grinning like an idiot!  We pestered the poor patient liaison in Texas for the last two days to schedule the next transfusion so that we could get our flights and place to stay settled.  She talked to the Doctor and the Nurse Coordinator (the Doc's wife, who I'm pretty sure is the one in charge, heh heh heh) while they were on vacation (!) and the procedure is going to be pushed back a week!! Which means... drumroll... only one more procedure!!
Because Geo has had so many transfusions of my Duffy negative bloodtype, there's not really much hemolysis (the breakdown of his blood because of the reaction between us)  any more so we can hold off for a bit and only do one more before birth.  Sweet.

7.10.2011

Newty sez:

Mommy: (to Newton) "Buzzy, put your toy away, please..."
Newty looks at me, knowing I just screwed the heck up big time.
Mommy: "Hey!! Are you Buzzy?"
Newty: "Nooooooo..."
Mommmy: "You're not Bernays?"
Newty: "Nooooooo... I'm not B'nays, I'm B'newty!"

posted from Bloggeroid

7.07.2011

Kindergarten

Buzzy is assessed and orientated for school!

Quelle allure...


 But, man did he look proud enough to burst when a little girl ran to her mother and said, "Mom!! Look! A real cowboy!!"
posted from Bloggeroid

7.06.2011

Disappointed.

So today's appointment in NYC didn't go too well. Totally different ballgame than Texas.  I'm sure that the doctor is highly capable.   Not at all comfortable with the protocol that he recommends, though.   They just don't do as many of these procedures or as much to ensure a positive outcome as we're used to.  He seems to lean toward earlier delivery as a matter of course and as a matter of consequence.   And after having watched and been through countless ultrasounds and MCAs, we weren't to confident in the person doing the ultrasound. Also, my interaction with their billing department leaves me pretty sure that we'll be getting a whopper of a bill even after all of our insurance company wrangling as of late. Icing on the cake.

So back to Texas we go.  The grandparents have come up with a fitting new nickname for Geo.  "Cash".  Couldn't be more appropriate.

6.29.2011

Geez.

The woman who was going to do the ultrasound today opened the door to the waiting room, chart in hand, and called out, "Mrs. Duffy?"
And I got up.

6.28.2011

Round III

Flight was delayed on the way down, so we missed the preliminary appointment.  We were able to get the blood work and all that done any way and skip some of the other rigamarole.
Otherwise, procedure went well.  They were not able to do the secondary abdominal transfusion, which probably means we'll have to repeat this in two weeks instead of three and that in turn means two more procedures instead of one. Poop.
We've started our own little transfusion day routine here: Hospital, BBQ, Sleep for six hours, Go out for a movie (which I haven't really done in about 5 years).
Even still, can't wait to go home.

6.27.2011

6.26.2011

Oh happy day!

Ballston Spa Family Fun Day...


posted from Bloggeroid

Newty sez:

Daddy: "Can you put this juice in the fridge?"
Newty: "I get a qwater?"

Capitalist.

6.22.2011

Stunned!

The ultimate hail-mary play just paid off today... after much pestering, our insurance company agreed to cut a check to the doctor in NYC that doesn't take our plan!!
Oddly enough, our local practice's utter ineptitude played a good part in getting this done. Seems the insurance company wasn't able to get anybody to confirm that they'd be able to do the procedure.  I'm betting, just based on my experience with them, that they actually weren't able to get to talk to anyone at all.
Never been so un-frustrated by them before!

posted from Bloggeroid

6.21.2011

31 weeks


As the anxiety goes down, the anticipation goes up!

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6.16.2011

Tough Guy

Guess who earned his orange belt tonight?  He had an extremely hard time at first because testing was held at a different school.  But he got it together and did what he had to in spite of the new environment and distractions.  Proud Mama.



posted from Bloggeroid

6.15.2011

Hand-me-downs

The second recommendation that we got apparently does not even do these procedures. He passed us on to another doctor in his practice, who in turn passed us on to a fellow {someone who has completed residency training (e.g. in internal medicine, pediatrics, general surgery, etc.) and is currently in a 1 to 3 year subspecialty training program (e.g. cardiology, pediatric nephrology, transplant surgery, etc.)} in the practice. I'm not even interested in moving on this... pretty soon we'll be seeing the janitor.

6.13.2011

Buzzy sez:

Hands his shoe to Ken.
"Evidentally, I stepped in some poop."

posted from Bloggeroid

6.05.2011

Round II

On our way to Houston again.

Nervous about going on a plane...  Buzzy's labor was five hours start to finish, Newt was three.  The flight takes three and a half hours. This could get nuts.  I have a prescription to stop contractions if I do go into labor on the plane. Also, I ordered supplies for an emergency birth kit to tote around on the plane and from now on...

6.02.2011

Buzzy sez:

Buzzy tackles a seated, shirtless Ken from behind.
Buzzy: "You're growing your belly like a girl!"
Daddy: "What!?"
Buzzy: "You got married and now you're growing a baby!"

                           ...so that's how it's done...

6.01.2011

Buzzy sez:

Buzzy: (holding an imaginary fishing pole) "I got one!"
Daddy: "What kind of fish did you catch?"
Buzzy: "Um... A Rackanoli Peefee Fish."

posted from Bloggeroid

5.31.2011

A different ballgame

Newty took 10 very intense minutes to learn how to to ride a bike.

posted from Bloggeroid

5.30.2011

Despite it all...

After having two babies go through a stint in the NICU and wishing I could be poked and needled and prodded in their place, I am so very happy to be able to do this instead of Geo.

5.28.2011

#$&*

The highly recommended doctor in NYC does not take our insurance.

5.27.2011

Enough is enough.

Buzzy is scheduled to get tubes at the end of June.  We had hoped that he'd grow out of his chronic ear infections (he's largely asymptomatic - no fevers, no pain - but he loses his hearing for a few weeks every time). We've tried elevated sleeping, chiropractors, herbal remedies, and on, and on, and on.  Now that he's starting school, we've gotta move on.

5.26.2011

So. Freaking. Happy.

With the boys and home at last.

5.25.2011

Follow Up Appointment

Tired and sore, despite napping for pretty much the rest of yesterday... feeling a little dumb because I'm so surprised that a needle straight through my abdomen might ache a bit.  Managed to make a few trays of celebratory cupcakes for the office over at Baylor  - apparently how I utilize my nervous energy as of late.
On to the nitty gritty...  had the follow up appointment this morning and I can't recall if my MCA was ever this low during this pregnancy!  Looks like for the time being, Geo's blood is as thick as molasses!!  The expectation is that his hematocrit will drop about a point a day and that keeps us in line for another transfusion in 2 weeks.
An additional development is that during testing, they found that Geo's blood had a pretty low reticulocyte (basically, brand spanking new or immature red blood cells, fresh from the marrow) level.  This kind of reaction is more commonly seen in Duffy's big, badass older cousin, Kell (another of the many proteins that are found on a red blood cell).  Ken & I have always been thankful to be dealing with Duffy and not Kell. When Kell is an issue, not only are the fetus' red blood cells broken down, it screws with its ability to make new ones (again, the reticulocytes).  Bad news.  As a side note, there is a  theory floating around that Henry VIII was Kell positive and had a genetic disorder, McLeod syndrome, which is linked to Kell as well.  This would explain the many late-term miscarriages, fertility issues, and his drastic physical and mental decline.
So my damn Duffy is screwing around, trying to be like badass Kell.  Why can't I be freaking normal, fer crying out loud?  The doc seemed a little surprised. At this point, I can't say that I am.  Dammit.
Anyway, this development doesn't mean much in the long-term... just that the little guy might need another transfusion after he's born in addition to the ones he gets before birth.

5.24.2011

Transfusion Complete

Ugh.  I am totally drained emotionally and physically.  But very happy to say that we didn't have to deliver  and I'm still carrying Geo.  Welcome to the first day of the third trimester.  I'm 27 weeks along today.
The transfusion went well.  A very intense experience.  The whole checking into a hospital at 5:30 AM, questions, questions, stick-your-ass-out-the-back-of-this-gown-please, more questions, now-let's-try-to-get-this-IV-in-3-or-4-different-veins... not my cuppatee.  I'm much more than a little freaked out that I'll probably have to do this every other week until the end of the pregnancy.  As a bonus, though, after the second transfusion, the MCAs are no longer a valid measurement and are out the window.  One fewer appointment each week!
Ken did very well as the back-up hard drive for all of the questions and providing the occasional footrub.  With the rest of his nervous energy, he busied himself with taking pictures.  Not nice.
After that, the rest for me was a medically induced blur.  Right before they begin any procedure in the OR, they summarize the procedure and then go around the room and state their names and role/job title.  Apparently, right after everyone was done, I introduced myself and stated I was indeed the patient.
So, there was a very slim chance that once they got the needle in and the blood sampled they would've found that Geo didn't need the blood.  40 is the hematocrit level (essentially a measurement of the number of red blood cells in his blood) that they were looking for and Geo was at 13.  They gave him 70cc of special 'enriched' blood, so he should be nice and rosy for at least a week or so.
On the downside to all of this, they weren't (and won't be) able to avoid going directly through the placenta to do these procedures.  This exposes my body to the new (Duffy +) blood and makes me produce more freaking antibodies which is why we're in this sitch in the first place.  Oh well, two steps forward and one back, I guess... it's still progress.
Follow up appointment tomorrow morning and then we're making our way home.  I miss the boys so much it hurts.

5.23.2011

The $%&@ has hit the Fan.

Now the trigger is officially pulled. For the record, today is the last day of the second trimester.
Went for the prenatal cardio scan this morning. Half an hour for the scan and then sat down with the doc for the results.  She started with a quick anatomy refresher.... and I was starting to get really agitated that this was leading to her telling us about Geo having a defect or a hole similar to the one I have...  but, no... his heart appears tilted because the right side is slightly enlarged.  The right side - and to a smaller degree everything else - is enlarged because it is working a little harder to move more blood.  Because of.... drum roll... likely anemia.
She also had done an MCA and got a higher measurement than Dr. Awesome had gotten on Thursday.
So we quickly waddled (I waddled, Ken walked) through a maze of 3 or 4 hospitals to get over to the Baylor Clinic. Better that than a 3 minute, $15 cab ride.  What the hell, Houston Yellow Cab?
In short, today's MCA measurement is a little more elevated than Thursday's.  Ken had suggested to Dr. Awesome that there had been some studies done that showed a slightly decreased MCA when steroids were administered.  I've had two shots of the stuff.
Steroids + elevated MCA + heart issue  + elevated antibody titer = Go time.
&%$*.
So, tomorrow at 5:30 AM, we're checking in for what is likely to be the first of a series of transfusions for Geo.  There is about a 3% chance of delivering tomorrow.  The doc pointed out that it was also a 97% chance of things going fine.  I pointed out that he was speaking to someone who has a blood type shared by significantly less that 1% population and of those with that type, the first ever in his experience to need a transfusion. Snark snark snarkity snark.
Dr. Awesome was able to highly recommend someone in NYC to continue this course of treatment, so it looks like a move is in the near future as well.  Thankfully, not as drastic as Houston, but still...

5.22.2011

Mmmm... Tex-Mex...

Had some seriously awesome Mexican food for lunch with the seriously awesome parents of our friend, Terrell.

5.21.2011

Recap

Well, on Thursday, we had an appointment with Dr. Awesome here at Baylor in Houston.  The velocity measurements (MCAs) that he got were better and slightly less alarming than those they were getting up in Albany.  We had blood drawn to measure the amount of antibodies floating around in my system and repeat the MCA on Monday.  Also, Dr. Awesome was a little concerned about a peculiar tilt to Geo's heart which can indicate a congenital defect of some kind so we're also going for a prenatal cardio scan on Monday.
Really, really missing the boys.  Like a pair of idiots, we went to the Houston Zoo and spent the day in the ridiculous heat, surrounded by other people's children.

Breakfast Klub

OMG! Delish Om nom nom nomnom!1!


posted from Bloggeroid

5.20.2011

5.19.2011

So far, so good


Things are going well here in Houston. Baylor is amazing.  We'll be here cooling our heels until some follow-up appointments on Monday that will clarify our next course of action. Still ridiculously stressful, but much less stressful than the last time around because we already know we're in caring and capable hands. Never been away from either of my kids for even a night before, so this kinda hurts.  First time in a Ronald McDonald House which has been both amazing and so overwhelming for reasons other than our own (instantly small) problems. A real reality check.
After some very positive appointments and not a scrap to eat during the day, we went out for the obligatory Tex-Mex.  I have never passed up a piece of pecan pie. Never, not even once. Behold the best pie that I have ever had in my entire life:




Moist, not cloyingly sweet and pecans as big as my thumb...and yes, I can think of food at a time like this, I'm preggo!

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Good Morning, Houston.

It's 78 freaking degrees at 3 in the morning.

5.17.2011

The trigger is pulled...

Well, time for plan B, as I suspected.  Got the call this morning from Dr.TABLE that he spoke with Dr.TIBSI and they have decided that the measurements warrant an intra uterine transfusion for Geo immediately.  He has no other signs of anemia - Hydrops, scalp edema, ascites, increased amniotic fluid, etc. - or distress... has decent movement... but it's go time. 
Told him I wanted all my records sent down to Dr. Awesome ( not even gonna try for an anagram anymore) at Baylor.  He was kinda pissed.

Gotta finish up work
Get all my medical records collected and sent
Go get the first of two steroid shots to kick-start Geo's lungs
Two hours to pack ourselves and the boys up for the week
Drive 4 hours downstate in the pouring rain to drop them at Ramma and Papa's
Get our butts to the airport in time to get to Houston by tomorrow morning
Hoo-leee Chit.

For the Record:

Me: (coolly preparing for the steroid shot) "You want my arm or my thigh?"
Nurse: "Guess again."

Buzzy and Newty go with me to all of the blood-draws, shots, etc.  No Biggy.  They were however, entirely captivated and enthralled that I was getting a shot in the Hieney.  Both of their faces were no more than 6 inches from my butt as I leaned over the table pretending for their stupid little sakes to not look totally panicked.

5.16.2011

Things are getting hairy...

Had an MCA today (a measurement of the speed of Geo's blood taken by ultrasound.  Faster blood = thinner blood = more anemic.  Been going at least once a week now for a few months in addition to regular OB appointments and bi-weekly blood draws... phew).  Not liking the numbers that they're getting...
We have tried mightily to see the same doctor each week because it is important to keep the technique for the  measurements consistent in order to establish a trend in the readings rather than jumping at a single high measurement.  This has proved impossible, despite our best efforts.
We had 'Dr. Technically Adept But Large Ego' (let's call him Dr. TABLE) which is who we have tried to see exclusively. Last two weeks have been 'Dr. Totally Inept But Somehow Involved' (Dr. TIBSI? I'm clearly not gonna put too much effort into this).
Dr. TIBSI tends to read very high when he can manage to get a reading.  I didn't think that Dr. TABLE was going to have the  readings go down and  cause a discrepancy.  Not liking where this is going.
Well, now they want me in twice a week...

5.15.2011

The Duffy Problem

My name is peabiscuit and I have a pretty unusual blood type. It took two really uncommon recessive genes to get this way.  On the surface, it's B+, but there are hundreds of other proteins on your red blood cells.  Fy(a-) means that I am lacking one commonly called Duffy. While it is far more common type in Africa, specifically West Africa (up to 90% of the pop.), it occurs in less than 1% of the caucasian population.  Sssooooooo...
Apparently, I am resistant to Malaria and AIDS.
Transfusions and transplants can be difficult.
And... having babies gets pretty nuts for us.
Ken has two dominant genes to have the protein, so our children will never match my blood type.  And here's where it gets ugly.  While I'm pregnant, when I'm exposed to blood that has the protein, my body recognizes it as foreign and produces antibodies to destroy it.  So, I destroy my baby's red blood cells, making them prenatally anemic.  While it would be easier if I was Rh-, there are worse rare blood types to have for having babies.


Later today (Saturday May 21th - this is a backpost) I'll be putting a little more background information here about the specific problem that we have going on.  Stay tuned...

5.11.2011

Buzzy sez:

Buzzy (looking at Ken sleeping, sans shirt): "Dad, you look smelly."

posted from Bloggeroid

5.10.2011

Frames for Gigi

Still gotta frame and ship 'em off to Gigi in Michigan, but they are turning out nicely if I do say so myself...




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5.09.2011

Happy Mother's Day



posted from Bloggeroid

5.07.2011

Ringling Brothers

The circus is always here on Mother's Day weekend. Sweet!


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5.06.2011

Ice Cream Truck... Sweet!!

Bunks are done!


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Another cat out of the bag

Sneaky Papa immediately weaseled the baby's name out of Buzzy during their trip up to visit.
So for the record, we're expecting Georg "Geo" Joseph B--- sometime this summer.
Really low, Papa. Really sneaky. Going after the innocent, weak link.

5.02.2011